Saturday 27 April 2013

Life after the Gastrojejunostomy

So the last time I posted F was going in to Leeds for his gastro jejunal tube putting in.

The surgery went well. The tube went in without too much trouble and we have been able to get his feeds back up.

He seemed to be great for a couple of weeks. Tummy distending had gone down. The facial rashes and swelling were gone too but they have all been back in the last 6 weeks.

We are giving piriton and citirizine as needed to try and stop any swelling or calm down any flared skin.

He seems to always have a pot belly now whereas he never did before. There isn't always wind in his tummy either.

We do have a referral in to Leeds to see a gastroenterologist to see if they can possibly get to the root of the problem.

The best thing is that we can still feed him while resting his stomach and venting him so he is still getting fed. Xx



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